Welcome to Mefties Run Club (MRC)! We are proudly running for MEF2C Haploinsufficiency Syndrome (MCHS)! Mefties is the affectionate name we give those in our community with MCHS and we thought we’d name our new club in their honour :) MCHS is a rare genetic disorder that affects the development of the brain and other systems in the body. It occurs when there is a mutation or deletion in the MEF2C gene.

Mefties Run Club is a new intiative by MEF2C Foundation Australia to fundraise and raise awareness for MCHS. MRC is mostly a virtual club; the Mefty community is far flung but well connected. Our goal is to grow awareness of MCHS through the act of running!

Being able to run is a privilege. It is not something everyone can do, including many with MCHS.

We hope that you’ll consider Mefties Run Club as the charity you’ll run for. If you would like to start a campaign, the best way is via GoFundMe, where you will find MEF2C Foundation Australia when you search for your charity.

And if you start a campaign we’d love to help you promote it! You can follow MRC on Instagram and Facebook